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Post by Patty on Apr 1, 2006 14:42:15 GMT -5
Beth Orgel recently sent out email with this important information.
I can recall also originally looking for DSRCT on the above site and was perplexed to not find it (it was actually kind of discouraging to think that DSRCT was so RARE that no one had ever even heard of it). So, thanks Beth!! I think what it means is that it will validate that the disease is rare and will potentially help with 'legal' and insurance issues.
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